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Following is a list of available internet resources regarding hospice, palliative, and supportive care. Clicking on a link will open a new window.
| Advance Directives Information of the Mass. Medical Association Advance Directives, such as health care proxies and living wills, allow people to retain control over medical decisions. |
| AIDS.org AIDS.org is a non-profit organization with a strict policy that aims to help prevent HIV infections and improve quality of life for those affected HIV and AIDS. It offers education and an open exchange of prevention, testing and treatment information on a centralized website. |
| Aging Care An interactive website that connects people caring for their elderly parents to other caregivers, personalized information, and local resources. As part of the website, AgingCare.com features a caregiver forum, which has become the most active online caregiver community. Caregivers can find 50,000 answers by caregivers and elder care experts. |
| Alzheimer’s Association The Alzheimer’s Association, a national network of chapters, is the largest national voluntary health organization dedicated to advancing Alzheimer’s research and helping those affected by the disease. |
| American Chronic Pain Association Since 1980, the ACPA has provided a support system for people with chronic pain through education in pain management skills and self-help group activities. |
| Benson-Henry Institute for Mind Body Medicine The Benson-Henry Institute exists for the study, advancement, and clinical practice of Mind/Body Medicine. |
| CancerCare Cancer Care is a national non-profit organization that provides free professional support services to anyone affected by cancer, caregivers, children, loved ones, and the bereaved. |
| Cancer Support Community Full of resources and information about cancer for patients and their support network. Create your own web page to let family and friends know how you’re doing and how they can help. |
| Care Conscious A site designed to continually advance positive caregiving outcomes through technological innovation, unparalleled subject matter expertise, and precisely customized programs and content that make family caregivers’ lives easier and more manageable. The 8 Principles of Healthy Family Caregiving Program provides Family Caregivers with guidance, support and a plan of action that is easy to implement and understand. |
| Care Pages Free patient blogs that connect friends and family during a health challenge. |
| Caring Connections Caring Connections provides a variety of free resources on topics including advance care planning, caregiving, pain, financial issues, hospice and palliative care, grief, and loss. |
| The Center for Mind-Body Medicine The Center for Mind-Body Medicine is a non-profit 501(c)(3) educational organization dedicated to reviving the spirit and transforming the practice of medicine. |
| Centre for Grief Education Through education, consultancy, counseling, and research, the Centre for Grief Education provides optimum support for grieving people, in order to assist their recovery and prevent chronic illness and ill health. |
| Completing a Life A resource for Taking Charge, Finding Comfort and Reaching Closure. It offers an interactive CD-ROM and a website geared towards helping patients and families learn about the practical, emotional, spiritual, and medical issues regarding advanced illness. |
| The Dougy Center The Dougy Center provides support in a safe place where children, teens, young adults, and their families grieving a death can share their experiences. |
| Dying Well Dying Well is the website of Dr. Ira Byock, an outstanding hospice physician who has advocated for excellence in end of life care and has written and lectured extensively on the subject. |
| End-of-Life: Exploring Death in America (NPR Series) From the NPR series Dying in America. Includes transcripts which may be heard, read, or ordered; resource links; and a bibliography. Readings section includes poetry, essays, and clinical matters; spiritual and religious texts; excerpts from fiction, plays, and scripts; and visual images. Also a place to add your story or read others’ stories. |
| Growth House An award-winning site and a gateway to resources for life-threatening illness and end of life issues. |
| Hospice Education Institute HEI is a non-profit organization with information and education about caring for the dying and bereaved. It targets both health care professionals and the public. There is a toll free number for obtaining information and referrals and for disscussing palliative care and bereavement issues. |
| Hospice Foundation of America Hospice Foundation of America is a not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care. |
| Kids Konnected Kids Konnected provides information, a 24 hour hot line, and a chat room for kids. |
| Lotsahelpinghands: create community A free, private, web-based community to organize family, friends, neighbors, and colleagues to coordinate activities and manage volunteers during times of need |
| Mesothelioma Center The Mesothelioma Center is committed to providing the latest, up-to-date information in the hopes of spreading awareness about the dangers of asbestos related cancers. Patients often wonder about the average mesothelioma survival rate and how long they can live with this disease when receiving a mesothelioma diagnosis. |
| National Alliance for Caregiving (NAC) NAC is dedicated to providing support for family caregivers and the professionals that help them, and to increasing public awareness of issues facing family caregivers. |
| National Cancer Institute The National Cancer Institute, established under the National Cancer Act of 1937, is the Federal Government’s principal agency for cancer research and training. |
| National Center for Death Education NCDE assists care-giving professionals and students in acquiring and maintaining a current knowledge base, and in developing creative and useful skills for providing care associated with end of life, bereavement, and loss. |
| National Family Caregivers Association NFCA exists to support family caregivers and to speak out publicly for caregivers’ needs. |
| National Hospice & Palliative Care Organization The national organization for hospices and palliative care programs throughout the country, NHPCO provides leadership and member support to mobilize social change for improved care at the end of life. |
| National Hospice Foundation HFA offers information and brochures about hospices, how to find and select a hospice program, communicating end-of-life wishes, and the medicare hospice benefit program. |
| Net of Care Net of Care offers detailed educational information about all aspects of caregiving. |
| Palliative Care This site answers questions like: What is palliative care? How can I get palliative care? Is palliative care right for me? and has relevant resources, stories, and articles. |
| Partnership for Parents Partnership for Parents is a support network for parents of children with serious illnesses. |
| Philips Lifeline The #1 medical alert service trusted by hospitals and healthcare professionals. Get fast access to help 24 hours a day, seven days a week. |
| SHARE Share serves those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. |
| Stop Pain Stop Pain is the Department of Pain Medicine and Palliative Care of Beth Isreal Medical Center in New York. |
| Strength for Caring Part of the Caregiver Initiative to help caregivers learn to reduce stress while providing the information they need to care for their loved ones and themselves. |
| Well Spouse Foundation Provides support for spousal caregivers. |
| What You Need to Know About Palliative Care An informative brochure about palliative care: what is it, who is eligible, where to go, etc. |
| ZarpZ Create videos and messages to be mailed at a later date – after death or when a child turns a certain age, etc. |
